14 January 2014
5 January 2014
The Road to Hell....
By
1 pm on New Years Day I had broken almost all my New Years resolutions.
Even
the things that I hadn’t officially resolved to do – but should do on a regular basis – I hadn’t done. I hadn’t started my
day with a glass of water, I hadn’t done my lymphedema exercises, hadn’t put
dog boots on Jed, had forgotten to take my Tamoxifen, and I had Maple Whiskey
with breakfast.
In
my defense, the Whiskey was splashed into my coffee by my spectacular hostess
at brunch and was considered medicinal due to the weather. And, once I’d had
that little pick-me-up, it would have been rude to turn down the pink champagne
for the New Years Day toast.
One
of my resolutions is to set new goals and follow through with them. I’ve I had
an excellent excuse for the last few years to stay still, but 2014 is
different. This year we’re just down to nipples and liposuction. How long can
that possibly take?
So
when my yoga studio offered an evening with a Life Coach, I signed on. Her talk
was about setting goals & setting intentions, and it seemed like the
perfect way to start the year. But
by the time Friday night rolled around, I was thinking of ways to get out of
it. Firstly it was freezing and I didn’t feel like going out. Secondly, I
really hate group activities, especially those involving shared feelings or
vegetarian food. This would include both.
And
thirdly, my friend, who had planned on coming with me, cancelled at the last
minute. So I figured it would be pretty easy to unset my goals to go to my
‘setting goals’ seminar. I could also reset my intention, thereby creating a
new intention to spend a cozy evening on the couch.
But
I got up and put on my coat. How, so
early in the year, could I avoid an evening where the only requirement was to
show up? So I went. And I pretended to enjoy the hummus
(yuck) and I shared a little about myself. And I learned a little about fear,
and regret, and what holds us back.
They
say the road to hell is paved with good intentions. (Personally I think it’s
paved with hummus – but that’s just me). If indeed it is paved with intentions
I’ve paved many a road. But luckily I've broken all my resolutions so the pressure is off. This year I'm going to concentrate on goals, cus I aints paving no more roads in
2014.
At
least not this week.
30 December 2013
Best Breakfast, Ever.
This year was the most delicious Christmas dinner ever. It was
the same menu, of course, but the combination of Vi’s moist turkey, and the
sisters seasoning skills, made it super duper delicious.
But the contender for best Christmas Meal Ever was following
the ice storm - and it had nothing
to do with a super-hot fireman (okay, it did).
Every year Jim does a toy drive. He and his colleagues
collect money, and buy toys which they take it to the local fire hall, where
volunteers distribute gifts for kids on Christmas morning. This year went
according to plan, and they had dozens of bags of toys to give to the children.
There was also a bit of money left over, so I volunteered to come with him for
another shopping spree. The plan was that we’d buy the toys, drop them off, and go
out for breakfast.
So we bought the toys, and headed to the local fire-hall.
Driving was a slow because of the recent ice storm, and people were walking tentatively
on the sidewalks. (But the trees were so beautiful!) We drove up to the fire station, and rang the doorbell. I
envisioned a super hunk sliding down the pole – but nothing. We waited for a
few minutes and looked through the window and realized there were no trucks. Everybody
was out.
So we went to another fire hall. Same thing. Rang the bell,
waited for a super hunk, and wriggled our toes to keep warm.
![]() |
| Let me grab the hot sauce |
We drove on. The streets were pretty slippery, and some branches
had started to fall. The streets, due to massive snow banks, were narrower than
usual and cars had to inhale when passing.
I assumed that when you do a good deed it would be easy. I
assumed that the effort comes with the providing, not the delivering. But I
assumed wrongly. Firstly, things rarely go according to plan. Secondly, we are
not that important. No matter what we are trying to do, there is always
something bigger going on in the world. And this time it was Mother Nature. And
due to Mother, there were a lot of domestic emergencies.
Later than morning we arrived at another Fire Hall and rang
the bell. Jim peered through the window and saw a fire truck. A good sign.
Seconds later the door was opened by a super hunk in a short-sleeved
shirt with 22’ biceps. The smell of bacon came wafting from upstairs. He smiled, 'Just got in, it's been a busy morning. We’re
making breakfast.'
I would like to say that we were invited in for eggs,
and that Mr. March and Mr. November were kneading bread in nothing but their
boots. But that didn’t happen. What did happen is that we exchanged ‘Merry
Christmas’s’ and went out for breakfast on our own. Amidst the storm and the
bad coffee we felt small and humble in a city where so many people were working so
hard to make things right.
And it was the best breakfast, ever.
24 December 2013
No Nipples for Christmas
Sigh.
No nipples for Christmas.
Not that I was expecting any in my stocking, but it would at
least be nice to have a surgery date so I could plan for their arrival. And
that was the point of my visit when I visited the Plastic Surgery Clinic last
week.
As usual, I’d gone into the examining room and stripped down
to my underpants. I was just slipping into the familiar blue and white striped
robe when there was a knock on the door. ‘Are you decent?’ came a soft Dutch
accent. I started laughing, ‘Does it matter?’ I opened the door, and there
stood Dr H, the man who had seen, touched, cut and sewed parts of my body that
even I will never see. I considered my new boobs mine as much as his.
![]() |
| 'Get your sister away from me!' |
I showed him my scars. ‘They’re very red, aren’t they?’ Dr H
nodded, and said that they were indeed very red. I told him I’d seen the scars
of woman who had the same surgery, and they weren’t nearly this red. ‘Yours are
aggressive,’ he said, in the least aggressive tone possible. I asked if that
was bad, and he said no, it was just the way I was healing.
‘You’re surgery was October?’ he asked. I told him that it
was June. I find it funny that the best doctors are always getting the smallest
of facts wrong, especially since all the facts are on the clipboard in their
hand. But I couldn’t hold it against him. Firstly, he’s been wonderful. And
secondly he looked very tired. I’d heard he’d just recently returned from a
trip away, where he’d been volunteering his services in a war torn country.
Not that he went to do breast augmentation or anything like that. He’s more
into microsurgery, tissue engineering, and the rebuilding of the face, head and
neck.
‘So, nipples?’ I asked him. He shook his head, ‘Not yet’. He
explained that my slow healing body needs more time to settle. A few more
months, most likely. However, he
did say that I’m good to go for the final touches on my waist. Currently I look
like Spongebob Squarepants, but after a little contouring, I expect to look
like Barbie. (She doesn’t have nipples either). And I will go from a 17” scar
to a possible 24”!
I got back into my clothes. Jeans, T-shirt, and light
cardigan. I walked down the hall carrying my coat and felt a blast of cold air.
Instinctively I pulled my cardigan closed; an instinctive chick reaction to
cover the headlights. But my boobs are numb and I don’t have anything I need to
protect. No nips. At least not
this Christmas.
But I did start thinking about a Christmas many years ago.
My sister Susan, who at age eight, did not approve of dolls that are not
anatomically correct. So she took my brand new Barbie, stripped her naked, and
drew on a couple of nipples. I was
devastated, because I, at age seven, liked things to be exactly as they were in
the package.
Times sure have changed though. My package is different. But
once again I am spending Christmas with my family, including my sister. There
will be liquor, and there will be magic Markers.
So maybe it won’t be a nippleless Christmas after all.
11 December 2013
The Universal Language of Wine
Recently I visited Princess Margaret Hotel & Spa for my
monthly lymphedema appointment. I
was sitting in the first class lounge enjoying my complimentary coffee when my
name was called, and was surprised to find out that I was not there for a private session, but for a ‘refresher class’ of lymphedema exercises.
Had I known it was a group activity, I would have cancelled.
I’ve yet to benefit from any group
hospital activity, and I will only show up if I am the centre of attention.
Also, treatment for canceritis takes up an awful lot of time, so I like to pare
it down to essentials. But since I was there, and since my big fat puffy muppet
hand was giving me trouble, I decided to stay. I obediently filed into the small boardroom and took my seat
at the table.
There were six of us, and nobody looked fun. At
least two of the woman looked like Miss Jane Hathaway, and one was a clone of
my grade nine math teacher, Miss Bowmen. The nurse handed out diagrams of our
lymphedema exercises and suggested we all do this together. This is not
complicated stuff. Head rolls, deep breathing, hand squeezes – I can do it in
my sleep. Not knowing how to make
a gracious exit, I went along with it.
Ideally, we’re supposed to do these exercises twice daily.
15 minutes in the morning and 15 minutes at night. Then there’s my 15 minutes
of scar massage. Plus my regular yoga routine, and dog walks – and oh yes – a
job.
![]() |
| Excercise # 11. (Optional) |
![]() |
| Exercise # 11 |
After 45 minutes the nurse asked if anyone had any questions.
I had but one. ‘How do we speed this up?’ She looked at me quizzically. I
explained that sometimes I did not have time to do two 15 minutes exercise
routines. The other ladies furrowed their brows and murmured softly to each
other. But what I really wanted to know was, if time was scarce, what are the
essential exercises.
‘Say I’m tired…’ I said, and watched as eyebrows were raised
and judgement wafted around the room. One of the Jane Hathaways cocked her head
at me, silently questioning my priorities. And I get it. The treatment of
side-effects is a job, and must be treated as such. Excuses not permitted.
‘Or say … I’ve having too many glasses of wine?’
The frowns turned to gentle smiles of understanding. ‘Ahhh’ said
the ladies, nodding in unison. Even the nurse smiled with understanding. ‘Well then, if you
only have a few minutes, just pay attention to the area that’s being affected.’
I’m not sure whether the ‘area being affected’ was my
drinking hand or my lymphedema hand, but they happen to be tone and the same. So in
the morning I’ll do my my full routine. And in the evening, another routine, if time permits.
3 December 2013
I Don't Have Fleas!
That was the good news delivered to me by my dermatologist
today.
On Friday my family Doctor told me that I was certainly a
victim of some kind of bites. I’d spent the weekend, along with my three pets,
itching and scratching, and knew there was something very wrong. While the doctor’s office was closed for the weekend, I had
plenty of time to let my imagination run wild. My rash was also running wild.
All over my back, under my
armpits, and a little on my tummy.
In my mind, we
had a huge infestation of microscopic bloodsuckers that were slowly torturing
us into frenzy. Jim remained
unscathed, for which I credited his swarthy Irish skin (Plus, I’m hairier). So I showed my doctor my rash, and she confirmed that I had
bites. She asked if anyone else in the house was itchy and I confirmed that
they were. Her diagnosis was fleas, or dust mites, or bed bugs. I asked if my rash was actually a bunch
of bites and she said that they were.
![]() |
| This flea has no good reason to be so happy |
Today I visited a Dermatologist. She took one look at me and
gave me her diagnosis.
'You’ve got Contact Dermatitis, ‘ she said.
‘I think I’ve got bites’
‘It’s not bites. It’s a rash’
‘My pets are itchy. I think I have fleas. Or bed bugs’
‘They might have fleas. You don’t. You have a rash. Your shirts are probably too tight’
‘I don’t wear tight shirts. I think I have bedbugs'
‘You don’t have bites. You have a rash.’
‘I think I’ve got bites’
‘It’s not bites. It’s a rash’
‘My pets are itchy. I think I have fleas. Or bed bugs’
‘They might have fleas. You don’t. You have a rash. Your shirts are probably too tight’
‘I don’t wear tight shirts. I think I have bedbugs'
‘You don’t have bites. You have a rash.’
Then she burst out laughing, and told me that the worst part
of her job is trying to convince someone that they DO have bedbugs, and this is the first time she had to convince
someone that they don’t. I showed
her the cream that my family doctor had prescribed. She snorted, and shoved it
out of the way, ‘That’s for babies. Use this.’ And she wrote out a prescription
for something way stronger.
I waked out onto Bloor St feeling like a million dollars. We
wouldn’t have to shave the pets or toss out the sofa. And even though I was
surrounded by people on a busy sidewalk, I didn’t care who heard me. I took out my cell phone and
dialed Jim’s number.
‘Hey guess what ? I don’t have fleas!!’
28 November 2013
The One That Got Away
Recently I was sitting at my friend’s kitchen table. There
were three of us girls, and as the conversation started to wander (kids, money)
I turned it back to me.
It’s been a while since the world revolved around my
surgery, and people rarely bring it up. I can’t go too long without thinking
about it though, because he reminders are always there.
Firstly, there’s the 17” scar that affects the way I dress,
and the way I move. I wear low riding pants and tuck in my T-shirts in to
protect myself from the back of the metal button on the waistband. Also,
anything more than a brisk walk and I can feel the tightness. Short bursts of
running are okay, but I still feel like someone hit me in the stomach with a
pie plate (I like pie). And then there are the weird Barbie boobs, that are
starting to look less weird by the day. Still, I’d be an oddity in a woman’s
changing room, and you can forget about a nude beach.
So friend # 1 was talking about something that was not about
me. I broke in and said, ‘Does anyone want to see my scar?’ They both looked at
me. ‘Sure?’ said #1 tentatively. Friend # 2 was more enthusiastic, ‘Yeah! I
kinda do.' So I hiked my shirt and watched their faces.
![]() |
| I told ya so |
‘Holy shit!’ they said in unison. With my belly exposed I
watched their eyes widen and their mouths fall open. ‘It’s HUGE’, they said,
‘It looks like you were bitten by a shark!’ Their reaction was immensely
satisfying.
But I was also curious about what they’d expected. Hadn’t I
said it looked like I was sawed in half by a bad magician? I could have sworn I
said it went from hip to hip and looked like jagged red teeth.
So I asked, ‘What did you think it would look like?’
Friend #2 looked up at me over her glasses, ‘Well…not like
this. I thought it was one of your exaggerations. You know.’
No! I did not know. ‘You thought I was exaggerating about
all this?’
My friend cocked her head, ‘Well…yeah.’
My friend cocked her head, ‘Well…yeah.’
Hmph. I wasn’t aware that I was an exaggerator.
Interestingly, I thought that I toned things down in an attempt to make
everything sound normal. Could it be that I pepper my adventures with anecdotes
that are somewhat embellished? And could this be a desperate cry for attention
because of my upbringing as a middle child? Perhaps I should lift up my shirt
more often - though it will be a
while before I display my breasts.
So for the record, my scar really is a mother. No word of a
lie. And in the world of bites it
looks like I was half eaten by a hungry Tiger Shark that was at least 12’ in length And you should have seen the one that
got away.
.20 November 2013
Hugging For Dummies
I never used to
be a hugger. In fact, I never really liked being touched.
But it’s no
reflection on my parents. I got as
much warmth and love as any little child could ask for. It’s just that I couldn’t
give it back. I found the moments
of hellos and good-byes very awkward, and the looks of expectation made me
unable to perform. Basically, I froze, with my arms at my sides like a Ken
Doll.
However I got
hugged a lot. Either the adults in my life were oblivious to my awkwardness, or
I was irresistibly cute, because they would frequently wrap themselves around
me, smothering me with the scent of perfume and cigarettes.
When I grew up,
my boyfriends would complain that I wasn’t affectionate enough. I tried to be touchier – but it didn’t
come easily and I couldn’t pretend I was someone I was not. Maybe I just didn’t like them enough.
Or maybe I just didn’t want to touch them in the places they wanted to be
touched.
But something
changed after my diagnosis. I became more affectionate, and reached out to bring
people closer to me. Not only was I good at receiving affection but I started
to dish it as well. Suddenly I started hugging. And once I learned to give a hug I was like Helen Keller
discovering her first word. I ran around with my arms wide open, and gleefully wrapped
them around anyone who came my way. I was in danger of becoming one of those
drunken aunty ‘c'mere you….’ - kind of huggers.
![]() |
| C' mere you..... |
But just as I
was enjoying the hugging I got my new boobs. For the first three months after
surgery I couldn’t hug for obvious reasons. And when I was ready to resume, I
found my boobs had very little sensation.
Though they are pert and firm, they are almost numb, and I can’t feel
the person against me. Essentially, I feel as though I’m hugging through a
snowsuit.
Recently I heard
on the radio that the average hug should last about three second, no less. It
takes that long to make a connection with another being. Three second is quite
long time when you think about it – but I think I can safely safe that I can
fully embrace it, because I am somewhat of a hugger.
But another
study said that a real hug should last 20 seconds. That is the ‘magic’ length
needed to release oxcytocin in the body. Often referred to as the 'love' molecule, oxytocin is associated with helping couples establish a greater sense of intimacy and attatchment. This 'happy hormone' is also linked to reducing blood pressure and the risk of heart diesease. And 20 minute hug
also reduces cortisol, the ‘stress’ hormone that does bad things too your body.
So really,
there’s no argument against a 20 minutes hug. Except that it goes on for an
eternity. A whole third of a minute wrapped around someone else. Without any
concept of whether or not my boobs are pressed against them. And it’s just long
enough to have to shift a bit, and feel just a tiny bit awkward. And I spent
the first 20 years of my life feeling awkward. So unless I’m hugging my
Wingman, or someone I really like, (or a tree) I’m only a 3 second hugger. So for now, it’s back to square one for me.
1 November 2013
Quickly & Quietly
Sophia Loren says that the key to youth is to 'get up
quickly and quietly'.
![]() |
| Me. (Not really) |
And I'm not getting this from a discount source like People
magazine or the Enquirer, either. It comes straight from my sister who once
worked with Sophia, and got all her info from her hairdressers and make-up
people who are Italian, devoted, and therefore totally reliable. (My sister
also said that SL is as gracious and elegant as she appears.)
But the point to her theory is that you don't want to make
any loud noises when you slowly get out of your seat. For instance, you don't
want to be in a position where you have to grip the arms of your chair, and
grunt, in order to stand up. Becoming erect shouldn't be a laborious process.
Nor a long drawn out freak show where people quietly turn their heads and feign
distraction while they're actually waiting for you to become upright.
What you need are good stomach muscles that will propel you
out of your seat like a teenager.
I totally believe that the thing that separates us from our Granny is
the ability to stand up at a moments notice. And for that you need a strong
core.
This is on my mind a lot these days because it's been four
months since I've crunched my tummy. And because I was on a belly-growing
mission before that, I've barely done a sit-up since 2011. So even though I
have a flat stomach, I am nowhere near tip-top shape. In fact, my abs are weak.
In my private moments I allow myself to sink into our big cozy couch. When the
phone rings, I roll slightly too my right, then make a grandpa noise, and push
myself up with the arm that is not swollen like a big fleshy pork sausage. Then
I lurch off the sofa and head of in the direction of the ringing, which has
usually stopped.
But that won't do in public. Neither my freshly dyed hair
nor my Levi demi-curve skinny jeans will make me look young on their own. In
fact nothing will, when I'm huffing and puffing to get out of my seat. And so I
perch. When I'm concerned about public approval I will sit on the edge of my
seat (like an Italian movie star) with my knees together and my shins at a
slight angle. When I need to stand up - I just float out of my chair as though a
string is pulling up my head - and spring into action. No problemo!
I've watched Sophia Loren in interviews. When sitting, her back is ramrod
straight, and when standing, she owns the ground she walks on. Here is a woman who will not allow her
body to collapse, and would never ever wear sweatpants to the grocery store.
I don't know the secret to her magnificence. It could have
something to do with Mediterranean genes, full lips, and bags of money - but I
think not. The secret is inside of her, deep in her core. But without olive
skin, lips, and bundles of money
to fall back on - I will do whatever she advises. So I try to get
up rapido e silenziso, a la Sophia.
24 October 2013
Bachelor # 2
I lied.
Apparently I do have a crush on my Surgeon. I almost
convinced myself that I was giving myself a pedicure for my own satisfaction.
But alas, I’m just a cliché.
Sitting in the waiting room waiting for my date with Dr. H,
I was feeling pretty good. I was
standing straight, had a nice haircut, and my toes were touched up with
‘Forever Yummy’ red. The nurse led me into the waiting room, saying, ‘Here’s
your gown, the Doctor will be right with you.’
‘Who am I seeing today?’ I asked jauntily, alluding to the
fact that there’s a big team and in the past I’ve been stuck with an eager
Fellow.
‘Well’, she said, ‘I’ve got you with Dr R today.'
My heart sank, ‘Not Dr H?’
‘No,' she said, ‘Dr H was called into surgery.’
![]() |
| Not my Surgeon |
Fuck. I
stripped off my clothes, put on the gown, and sat down angrily with my arms
crossed across me chest. This was just so un-fun! I guess I’d been looking
forward to seeing Dr H after all, and maybe getting a compliment with a soft
Dutch accent. During my
previous appointment he’d told me that I looked really good, and that was when
I was still hunched over. Wait till he sees how good I look now that I’m fully
erect!
I played with my iphone for a while until Dr R entered the
room. He came in tentatively, as though recognizing his inferiority, and took
his place on the little rolling stool. Before he even spoke, I stood before him
and opened my robe. He smiled politely and I noticed that his teeth were too
big for his face. (Like he’d borrowed his dad’s dentures that were a couple of
sizes too big, so he had to jam them in at an angle) Because he was sitting, I
also noticed that he’d carefully styled his last few precious hairs over his
soon-to-be bald head. Soon the rest of the world would find out too. Bachelor #
2 was a big disappointment.
Dr R asked about my scars, and gently ran his fingers over
everything that had been sliced and diced in the last couple of months. Then he
motioned me to sit, and showed me how to give myself a massage, to break up all
the scar tissue. Even though I was sad, I enjoyed his soft strong hands. He
opened my file, and asked me what my plans were regarding my next surgery. I
must have made a face because he said, ‘I read your file. You’ve been through a
lot. You probably don’t want
anyone touching you.’
It’s true. I had
been through a lot. I nodded demurely and crossed my legs at the ankle,
admiring my toes. Poor me.
Maybe it’s because he had my secret file in his hands, or
maybe it was because he had big brown eyes and was wearing scrubs, but all of a
sudden Dr R had moved from funny looking to mildly attractive. By the time he
asked if I had any questions, I had the stirrings of a crush.
I must admit to a bit of relief. I liked Dr H the moment I
met him (googled him) and I don’t want to turn into the girl who falls in love
with her Plastic Surgeon. Putting Dr H on a pedestal would just make my life
complicated. But luckily for me – I’m way more shallow. All it takes is a good bedside manner,
soft hands, and a clean set of scrubs for me to want to show off my ‘Forever
Yummy’ toes. (Dutch accent is optional).
My next date with Dr H is in December. Think I'll go for 'Festive Red', no matter who sees me.
18 October 2013
Red Toes
Tomorrow I've got an appointment with my Plastic Surgeon, so
I'm giving myself a pedicure.
Just a few months ago, preparation would have been a
different story. Night sweats, nausea, long lists of questions, atavin, and
deep calming breaths. After all, my life hung in the balance, and my health is
a big concern to me. I'd usually bring someone to the hospital with me. A
friend for emotional support, or Jim, for his shoulder. But tomorrow I'm going alone. And it
should be easy. Just a
simple follow up-appointment, and maybe a chat about my nipples with my
handsome surgeon.
For most of my appointments I am nearly naked. Sometimes
I've had hair, and sometimes I've been bald. Other times I've been completely
comatose. In my fantasy I was not drooling, but I think it's safe to say, that
I not at most charming. My toes
were really the only thing that were always for certain. During the worst
moments I had to sit alone in exam rooms for hours wearing my Amish blue cotton
gown, and my pretty toes were something I could recognize when my surroundings
seemed so foreign. They were
the last thing I saw when I lay down on the OR table, and the first thing I saw
in the morning when I kicked off my hospital blanket. And they were the beacon
that I followed when I took my first tentative post-op steps down the hospital
corridor.
My red toes were not lost on my nurses. 'Nice colour!' they'd say as they covered me with a
blanket. 'Thank you!' I'd reply. More than the compliment itself I enjoyed the brief
real-life moment, a reprieve from the sterility of hospital land. The tiny moment of shared
girlishness that felt like home.
Surgeons never seemed to focus on my feet. But who knows - perhaps they
glimpsed a flash of colour as I lay on the table. Or, perhaps they were too
busy re-attaching arteries to notice.
But tomorrow I'll be bare-foot and topless in the exam room.
Every single thing will be drab shades of celery, beige, and gray. Even Dr. H
in his Ralph Lauren scrubs will almost blend in with the furniture. The
brightest thing in the room will be my ten toes and I like to keep them well
groomed. No matter what kind of crazy I've got going on up top - from the
ankles down I can always hold it together.
So tonight I'm touching up my toes. And I feel slightly joyous. This time
I'm not doing it for security. A pedicure this evening is not part of a 'pre-battle' package that includes
anxiety and bad dreams. It's just one simple fun task for a date with my
handsome surgeon. But I'm truly not doing it for him.
A nice pair of lacey underpants has been set aside for tomorrow's meeting. But the pedicure I do for me.
9 October 2013
Bedtime Ballet
![]() |
| Ready for Bed! |
Bliss.
Then my arm swelled up like a fleshy pork sausage due to
lymphedema. I was told that one of the most effective things I could do to
prevent the swelling was to sleep with my arm elevated. So besides propping up my body, I built
another stack of pillows so I could rest my arm. This worked wonderfully as
long as I stayed still all night. But – as luck would have it - the required elevation coincided with my new ability to roll
over. And I like sleeping on my side, so as soon as I fell asleep, I’d
roll atop the sausage. This didn’t fare well for the arm, and I would wake up with
a giant muppet hand.
So I tried weighing myself down with some heavy pillows
and resting the arm on top of that. It’s wildly uncomfortable, but so is
lymphedema. And that position is just way to tempting for our tiny cat, who
finds the highest point in the house, and sits on it. And currently the highest point would
be me.
So here’s what I do. Recently I’ve been able to stretch my
arms over my head - something that I’ve always taken for granted, and an
ability which makes it much easier to put on clothes. And now nighttime has
become a bit of a dance. I have to build a downy fence around my body so that I
don’t twist too quickly. (My 200 stitches are still healing, so I pay for quick movements). Above me are some more pillows where I plop my Muppet hand. So
when I turn, I keep my arm & hand immobile and just move my body. Ta-da!
After executing a perfect rollover I wake for a brief moment
of triumph. Since I watch Dancing
the Stars, I can’t help picturing myself performing a flawless and elegant ‘inside turn’ complete with satin ball
gown and wild applause. In reality it’s just 145 pounds of sweaty flesh
clumsily rolling to the side, and dislodging one angry cat and a man.
But it works - so I’m giving myself a perfect score My dance may not be Swan Lake, but I'm not really a ballerina, and our pillows aren't even real down.
7 October 2013
The Land of 'Should'
I’m starting to hate the word ‘should.
Perhaps I’m overly sensitive to suggestion, or maybe I’m
giving off the help-me vibe, but lately I’ve been finding that people are very
enthusiastic in telling me what I should and shouldn’t do. And I don’t like it.
I think it started in childhood. I remember my mother Violet
responding to my complaints about being bored by snapping, ‘You should do
volunteer work’. I should? Why? My teenage mind did not find that an
appropriate reaction to making it through a rainy afternoon. I was thinking
more along the lines of having some chips – or playing checkers.
Fast forward to last weekend and a loved one told me that I
should become a real estate agent so I could work with my sister. ‘You should
be a Realtor!’ they said. I should? Why? While I may be considering changing
careers but I don’t think I can do any that involve math. (Shouldn’t they know
that)?
In between were about a million other ‘should’. You should
join a book club. You should go on a diet. You should go off your diet. You
should eat more vegetables. You should watch out for unopened mussels. You
should invest your money. You should use a condom. You should use hand
sanitizer. You should make more of an effort. You should be back to normal by
now.
These are the ‘should’
you hear when the person dishing out assumes that you haven’t already thought
of it. As in, ‘Hey, your head is bleeding –you should get a band-aid’. (Really?
A band-aid, and not an onion?)
At some point I stopped taking ‘should’ as a suggestion, and
heard it more as a reprimand of my behaviour. I don’t want to hear all the
‘shoulds’ when its stuff I already know. Of course I know I ‘should use a
Kleenex’. And I know I should be more patient. And I know that I ‘should’ be relieved and grateful that my
treatment and surgery are largely behind me, and I ‘should’ make a plan for the
future.
But sometimes you don’t want someone telling your what you
should feel. Rather, you want a road map of how to get there. There’s a lot of
intimated effort that goes along with the word ‘should’ and when you’re tired,
it’s hard to catch up. I need
solutions, not suggestions. And definitely not an admonishment.
Don’t tell me I ‘should’ relax. I know I should relax. Tell
me how to relax. I hear the word ‘should’ about a thousand times a day. Mostly
well-meaning and often in my own head, but still - a lot of pressure. Sometimes
you want people just to stop talking, and guide you to the magic land of
‘Should’ that they keep talking about. I know where I ‘should be’ I just don’t’
always know how to get there. Or even if I’d want to go.
It’s a benevolent voice that might say, ‘Hey, you should gets some sleep’. But
it’s an even better one that will take your hand and say, ‘I’m putting you to
bed’.
29 September 2013
Back to Work in the Real World
Getting back to the working world is not easy.
In my excitement
of being ‘back to normal’ I forgot the real world and how fast it moves! Sure I
can do everything I used to, but only as long as I do it at my own speed. I can walk the dog, do my lymphedema exercise, apply my
creams, do a stomach massage, bathe, dress, and be out the door in about four
hours. This
doesn’t necessarily make me the best man for any job, but right now it’s the
best I can do.
But that’s not even the problem. The bigger issue is that
I’ve seem to have lost the chip in my brain that made me such a brilliant
mutli-tasker. When I left my job four months ago, I could keep a dozen lists in
my head, along with a mental Sharpie to cross things off. Now I walk into a
room and completely forget why I’m there.
And I had conversations such as this:
Colleague – Okay, we need fabric for a curtain awning
Me – I like your shoes
Colleague – Thanks! This is a rush job, and we have to get
it to the seamstress by noon.
Me – Did you know that Valerie Harper is on Dancing with the
Stars?
So that was Week one, but things have picked up slightly
from there. I’m slowly getting back into the real world.
I can now concentrate for slightly longer periods of time (though
my mind frequently drifts off to thoughts of swimming, or nipples). And I speed
through my morning exercises, taking more time to do them in the evening. I’ve also
gotten used to wearing semi-professional clothing rather than my billowing
wardrobe that got me through the summer. Still, there are many favorite shirts
that I can’t wear, in fear that, if I reach up to get something, I’ll expose my
stunning 17” scar. It’s never to far from my mind that beneath my clothing, I
still look like a Raggedy Anne doll that had been bitten by a shark.
Last week for work I visited a fancy antique shop. The mission
was to recreate a restaurant from 1902. The fellow in charge (Alex) was
enjoying our task. We started talking about Downton Abbey and he swooned
slightly and whispered, ‘Oh, yum. Antique porn!’
I laughed, and checked myself out in one of the antique
mirrors on the counter. My shirt, I noticed, had come partially undone. Not
only were my radiation tattoos visible, but also a good chunk of my pretty pink
bra. (How am I supposed to monitor these things when my boobs are numb?) So I
mumbled ‘Oooops’ and did up a couple of buttons.
Alex grinned slyly and said ‘Don’t worry honey, I’ve seen it
all’. I raised my eyebrows, and he said, ‘I have four sisters – so I’ve seen everything.’
All I could think was, ‘Well you ain’t never seen anything
like these!’ Seriously! He has no idea.
So standing there amidst the fine china, I realized that just
when I think I’ve eased myself back into the normal world, I still have
another foot that is firmly planted in another nearly normal world. A world in which it feel like there is only me.
13 September 2013
Middle Aged Crazy
I can spot them a mile away.
This time was at my local grocery store, and she was dressed
in expensive yoga gear from head to toe.
Her mat was slung across her back, in it’s own Lululemon bag, and her
hair was pulled up in a lop-sided bun. Regardless of her outfit I knew she was
one of us; the middle-aged crazies are hard to hide.
When I first saw her I was standing in line. (Sadly, I had
thirteen items, so I was standing in one of the slower lines). She came
crashing through the front doors, picking up speed as she moved past the check
out lines. She speed-walked through the produce section, past the frozen foods,
and took a sharp turn down the cereal aisle.
For a moment I thought I’d lost her! I’d extended my neck as
far as it could go and was spinning my head like an ostrich. I knew she wouldn’t
be long.
Seven seconds later she remerged, frantic and glistening,
her yoga mat swinging across her back like a sac of arrows. At the risk of
mowing down a small Chinese man, she sprinted to the ‘Express’ lane. I was
practically beside her now, and I recognized a kindred spirit - as I am
intimately familiar with the glassy eyed mania of a peri-menopausal woman on an
urgent quest. Beads of sweat were forming on her upper lip, neck veins were bulging,
and in her hand was a single box of Frosted Cherry Pop-tarts. With sprinkles.
I’ve been in that situation before. Many times I’ve had to
make a serious detour to satisfy a craving. Chocolate Brownies when I was a
teenager, French fries when I was hung-over, and more recently, Hagen Daaz ice
cream straight from the container. And the challenge is always the same – how
fast after you have it in your hand can you get it to your mouth.
Yoga lady was thinking the same thing. Because of the way
her leg was shaking I doubted that she’d even make it outside. I also doubted
that she’d actually made it to a yoga class. I am familiar with that too. There
been times where I’ve tried sitting still and enjoying the sounds of ‘Om shanti
shanti shanti’, and the only thing I could think was, ‘Oh shut-up shut-up
shutup'. And I’ve left.
Crazy yoga lady finally made it to the front of the line and
flung a five-dollar bill at the cashier. As she raced toward the front of the
store she started tugging at the top of the box. By the time she’d stepped
through the doors, she had the interior pocket between her teeth, and was
trying to rip it open. I paid for my groceries and ran out to the sidewalk.
She was about twenty feet ahead of me now walking leisurely
down the road. She’s had her fix and was feeding herself slowly. I new from
experience that she’d inhaled the first pop-tart, and maybe the second. Women
know these kind of things for certain.
I also knew that from now on her day would just get better.
She’d returned to her normal self and was now just another stylish yoga lady. Covered in sprinkles.
6 September 2013
Numboobs
I can’t feel my boobs.
It’s a new sensation, so I feel there should be a word for
it. Like ‘Numboobs’ or ‘Noobums’ or something that makes me feel like I’ve just
been kicked out of an African tribe for not being cool enough.
![]() |
| Cutlets |
The first time I really noticed was last weekend. Jim and I
were in a dark movie theatre and popcorn kept slipping from my greasy fingers –
and down my shirt. Normally I dig
it out and pop it back into my mouth, but I couldn’t feel it! There was none of
that popcorn itch that I normally associate with ‘date night’. I tried in vain to dig it out but I
felt like I was poking around in someone else’s chest.
That night in bed I tried to summon some sensation. None.
When standing I can feel that there is some weight on my chest. And it’s not
unpleasant. There’s just enough jiggling to feel like they’re actually attached
to me - which is probably similar to a transvestite who pops ‘Natural Touch’
silicones implants into his bra. Which, incidentally, look like chicken cutlets.
![]() |
| 6 lb Cat. |
So I lay in bed trying to feel my Numboobs. Apparently our tiny cat had the same
idea. I felt a soft thump as she dove off the dresser and onto my chest. She looked me in the eye, daring me to
do something But I didn’t, so she settled down and tucked her tiny head under
my chin.
(To be fair, she only weighs about 6 lbs, and I can’t feel
her at the best of times. But I hoped that this wouldn’t set a precedent for
our 19 lb cat, or for the 55 lb basset hound.)
Today I went to the hospital to check in with plastic surgery
clinic. There’s a tiny bit of guck escaping from the incision on my right
breast, and I wanted have it checked out.
Mostly, I wanted to know if it was okay to go swimming. (Girls weekend
ahead!) The nurse took a look at the area in question. She started
poking around, but I felt nothing but soft pat, as though I was wearing a ski jacket.
‘Does this hurt?’, she asked.
‘No!’ I said, ‘They’re numb!’
‘Oh’, she seemed delighted, ‘Then I can squeeze as hard as I
want!’
After examining me, she decided that it’s best if I don’t
swim. There’s s still the remote chance that the teensy tiny opening inhales
some lake water and becomes affected. Hmpf.
She left the room, and I did up my shirt. Then I went down
the elevator, and onto another floor for some blood tests. As I rolled up my sleeve, the nurse motioned
for me to do up my blouse. Ooops.
A few buttons had come undone and I was pulling a full Fabio.
That day not only had a tiny cat enjoyed my numoobs and
cleavage, but several lucky patients as well.
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